What O2 users have to say



http://www.upstate.edu/neurology/haas/hpclrx.htm
Breathing 100% oxygen from a tight-fitting mask at a flow rate of 7 liters per minute for about 15 minutes diminishes or eliminates the headache in the majority of patients

http://www.hospital-doctor.co.uk/hd_news/hd_news_article.asp?ID=2498&;Section=Feature
Inhalation of 100 per cent oxygen at seven to 12 liters/min is rapidly effective in relieving pain in most sufferers.

http://www.ion.ucl.ac.uk/~headache/cluster.html
One of the safest treatments for the acute attacks is oxygen. This needs to be between 7 and 12 litres/min to be effective and may take 15 minutes to work.

http://www.mhni.com/faqs_cluster.html#treatment
Oxygen (100%) inhalation should be administered via a face mask at 7 liters/min for 10-15 minutes at a time, preferably given at the onset of the attack.


O.U.C.H. excerpts
http://clusterheadaches.org/library/medications/O2.htm

ABC News - Good Morning America
Pure oxygen is the most popular treatment for stopping headaches and it is safer than others, which can have powerful side effects

http://www.headaches.org/consumer/topicsheets/oxygen.html
Oxygen therapy is not a well-known modality for headache patients. Many physicians are unaware of the benefits of oxygen therapy, as are third-party payers who hesitate to reimburse for its use.

http://www.nlm.nih.gov/medlineplus/ency/article/000786.htm
Inhalation of 100% oxygen often relieves cluster headache

http://www.ninds.nih.gov/health_and_medical/pubs/headache_htr.htm
Another option that works for some cluster patients is rapid inhalation of pure oxygen


Posts and Testimonials from the CH Message Board and Statements from Oxygen Users

*****selected posts from CHMB*****

Re: 10 years episodic, first post on: Mar 12th, 2003, 2:40pm Started by CJohnson | Post by Ueli
Hi Curtis,
The insurance talking about blood saturation level is complete BS. Remember, for a doctor that committed some serious blunder there are only two choices left: Pharma company rep or "medical expert" at an insurance company. The only use of oxygen they know is for those with respiratory disease, and there a check on saturation makes sense. But we use the oxygen treatment in a different way (the word "therapy" implies a long term application, to improve, be example, on the saturation level). For us oxygen is to treat an acute emergency, a cluster attack. Bombard your insurance with facts, by example those from the excellent compilation of Mr.Happy at http://www.drfeller.com/ch/o2ch.html. It might also be helpful to mention the fact that a single Imitrex injection saved pays for a month supply of oxygen.
PFNADs Ueli

Message Board Topics / General Posts / i'll sing it again on: Mar 1st, 2003, 8:08am Started by Brassbear | Post by rumplestiltskin
...i'll say it again....might as well...since i know nothing about 98% of the drugs and treatments at this site....i might as well chime in about the few things i do know.

Because new uninformed clusterfolks arrive daily some things just deserve repeating. Because some buds are dense and simple minded some things are worth clarifying.

To propely treat a Clusterheadache with oxygen one must breath in 100% O2 with EVERY breath ...thus the special mask and bag which allows no outside air in and has lil valves which are supposed to insure this happens.

My present mask and many of my previous ones suck. The intake check valve leaks so that when I exhale some of it wants to go back into the bag. I have to pull it away from my face with each exhale to prevent this.I have a thick scraggly beard so then I must push the mask tightly to my face each inhale to keep air from filtering in around the edges because of my bush...and all that while running in place! A true clusterhead will go to any length to make the pain stop ASAP.

Those nose thingy cannule hoses are devices from satan. I first tried O2 because I read about it here. It came with those irritating lil nostril grabbers. Over and over, after a 1/2 hour of unrelenting pain i would tear them from my face and finally claimed "oxygen does not work fer me"

Someone here finally convinced me that I had to use a non-rebreather mask. That did not abort my CH till I finally went out and got one. That did not abort my CH till I actually used it. Even at the highest flow rate that did not abort my CH because the orifice of the regulator was clogged and the bag wasn't filling fast enough.
It was not until I had the rig set up so that no matter how fast and deep I breathed ...the bag never emptied and I never had to wait for it to fill....then it worked!

My first successful O2 abortion of a CH happened in about 3-5 minutes. Until I die I'll never forget that moment.

With O2 we are talking flowrates...not octanes. 20LPM is not "better" than 8LPM. It's all 100% O2. Using a tight fitting non rebreather mask, the proper amount fer you depends solely on how fast and deep you breath so that the bag never empties and you never have to wait for it to fill....there... I said it again.
I realize telling someone 15 to 20 LPM's is a farely safe bet...but it is misleading...of course... it is easier and simpler than saying all the stuff I just said...hmmm
...nevermind.
good grief
den


*****post from BobG*****March23,2003*****
posted by jonny on 9-27-02:
You can't hook a non-rebreather mask to a welding 02 regulator, you have to have a medical reg converted to fit a welding 02 tank. That takes a 1/4" NPT (National Pipe Thread) stem and a 540s connector, no gas house will do this for you cause of liability.

*****old board*****
http://www.clusterheadaches.com/wwwboard/messages/64645.html
string on bubblers to add moisture to O2 set-ups Sept. 24, 2000

http://www.clusterheadaches.com/wwwboard/messages/59328.html
string on bubblers to add moisture to O2 set-ups Aug 10, 2000

http://www.clusterheadaches.com/wwwboard/messages/50042.html
Bob Kipple Chilling O2 "Cool O2" May 10, 2000

http://www.clusterheadaches.com/wwwboard/messages/81233.html

*****EXCELLENT for print-out*****
Ted information on Oxygen and how to get insurance to pay March 7, 2001


*****funny o2 story*****
http://www.clusterheadaches.com/wwwboard/messages/10845.html


*****And a quote from Bob-Mr. Kip Scale-Kipple on the subject of smoking while using oxygen*****
"Did that once, interesting little fire."


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